Update # 3
This letter was sent on March 22, 2006:
Dear friends,
We received so many calls and replies back to my last message that I feel the need to write again and give you the latest scoop.
Yesterday was the spring equinox and the Baha'i New Year. I felt the need to make changes with the New Year so we started it off meeting my oncologist again to find some new strategy for faster recovery (you know I don't have much patience!).
So here are my New Year resolutions:
1. I will go back to MD Anderson to see if I qualify for any trials or non standard treatment options. My onc still feels positive that we will knock it off with 4 more cycles but does not eliminate the possibility of SCT (stem cell transplant along with higher dose of chemo).
2. I will take more medications to help me get through the side effects and pain. Up until now I've been tolerating most of it and took very few additional meds because I already get steroids and all the prescriptions I've tried really made me groggy and hazy and I felt I could not take them with Andryusha in my hands. So we'll keep trying until we find the ones that keep me awake and in touch with reality.
3. I will work on getting fit again. I will walk more, I will not skip yoga (especially since my favorite teacher tested positive on her mammogram) and I will resume swimming. Honestly, the bone pain made me slack a whole lot and I just always feel exhausted and tired. But I've been reading Lance Armstrong's book and I see that he kept walking through the whole treatment, no matter what. So hopefully with a little help from drugs I'll be able to do just that. :)
4. I will eat better ... with mom gone we've been skipping meals all the time and the nausea and mouth sores, and tongue blisters contributed to it a great deal (and every time it takes longer for them to go away even with medicines). Also, I read Lance Am strong was advised to eat more organic food and include more broccoli and berries, and use organic dairy and free range chicken instead of regular. So even though it's much more expensive to eat organic I will do my best to make the switch for the 4 months of chemo ahead.
5. I will take more homeopathic remedies to help deal with the insomnia and stomach burns I've been having. It kind of goes along with eating consistently.
6. And of course, I will keep praying and keep my faith up. Someone read my palm the other day ... It does not look like it' my time to die yet (though there is a sidetrack along the way). I hope you'll keep praying for me too and together we will survive it! I keep playing this movie every time I want to quit and die.
And here is small gift for New Year -- pro pics from when Andryusha turned 4 months.
Peace and Love,
RayAndNat
Dear friends,
We received so many calls and replies back to my last message that I feel the need to write again and give you the latest scoop.
Yesterday was the spring equinox and the Baha'i New Year. I felt the need to make changes with the New Year so we started it off meeting my oncologist again to find some new strategy for faster recovery (you know I don't have much patience!).
So here are my New Year resolutions:
1. I will go back to MD Anderson to see if I qualify for any trials or non standard treatment options. My onc still feels positive that we will knock it off with 4 more cycles but does not eliminate the possibility of SCT (stem cell transplant along with higher dose of chemo).
2. I will take more medications to help me get through the side effects and pain. Up until now I've been tolerating most of it and took very few additional meds because I already get steroids and all the prescriptions I've tried really made me groggy and hazy and I felt I could not take them with Andryusha in my hands. So we'll keep trying until we find the ones that keep me awake and in touch with reality.
3. I will work on getting fit again. I will walk more, I will not skip yoga (especially since my favorite teacher tested positive on her mammogram) and I will resume swimming. Honestly, the bone pain made me slack a whole lot and I just always feel exhausted and tired. But I've been reading Lance Armstrong's book and I see that he kept walking through the whole treatment, no matter what. So hopefully with a little help from drugs I'll be able to do just that. :)
4. I will eat better ... with mom gone we've been skipping meals all the time and the nausea and mouth sores, and tongue blisters contributed to it a great deal (and every time it takes longer for them to go away even with medicines). Also, I read Lance Am strong was advised to eat more organic food and include more broccoli and berries, and use organic dairy and free range chicken instead of regular. So even though it's much more expensive to eat organic I will do my best to make the switch for the 4 months of chemo ahead.
5. I will take more homeopathic remedies to help deal with the insomnia and stomach burns I've been having. It kind of goes along with eating consistently.
6. And of course, I will keep praying and keep my faith up. Someone read my palm the other day ... It does not look like it' my time to die yet (though there is a sidetrack along the way). I hope you'll keep praying for me too and together we will survive it! I keep playing this movie every time I want to quit and die.
And here is small gift for New Year -- pro pics from when Andryusha turned 4 months.
Peace and Love,
RayAndNat
posted by Natalia @ 11:10 PM
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