BMT visit
Well, I guess I'll never have it easy, will I? We finally saw the Bone Marrow Transplant department (BMT) and things are more complex than we thought. The whole SCT (stem cell transplant) is really up in the air pending my scan results. Depending on how well I do with these high doze chemos (2 rounds of ESHAPs) I may be scheduled for auto or allogenic transplant. Auto is when they use my own stem cells, allo would be from a donor. Of course, they like to say that they hope for the best (meaning the auto SCT) but plan for the worse (the allo). With that said, if I am not clean on July 10 after this next ESHAP, the likelihood of having an allogenic transplant will be eminent and my chances of survival lessened. The doctors said after a while the body gets worn out with so much rounds of chemo and the onset of other cancers possible, if I am eventually cured. Get this, if I eventually have to have an allogenic transplant the whole cost will be nearing half a million for everything. Mind blowing, huh?! That means when I get cured, I will be worth much more than ever...I will get close to being the million dollar baby :) Another interesting factor in all this is that if I need a donor, it will preferably need to be someone of my ethnicity, meaning from the states of the former Soviet Republics. That makes it more difficult to find someone that will match with me. For now, they want to get the DNA of my brother to see if he is a match (chances are around 25%).
So dear friends, hope you see the magnitude and scope of this kind of dilemma. Thank you deeply for your continued support and prayers. On a side note, Andruysha is doing very well, growing and learning new things everyday. Raymond continues to be superman holding the world together around us. Be good to yourselves, cherish every moment with your families and turn your gaze to the Omnipotent and All-Knowing Creator.
So dear friends, hope you see the magnitude and scope of this kind of dilemma. Thank you deeply for your continued support and prayers. On a side note, Andruysha is doing very well, growing and learning new things everyday. Raymond continues to be superman holding the world together around us. Be good to yourselves, cherish every moment with your families and turn your gaze to the Omnipotent and All-Knowing Creator.
7 Comments:
At 4:33 PM, Anonymous said…
Hi Natalia, this is amanda walley, cathryn's daughter. I wanted you to know that I have been thinking about you and you and your family have been in my prayers.
My mom told me that when she saw you last , that Andruysha had grown a lot and that he is a very cute baby boy. :)
Well, I wanted to say hi and to let you know that we all think of you often.
-Amanda :)
At 9:09 AM, Natalia said…
Thank you Amanda! Thank you Cathryn! Please tell Celeste that we received her beautifu drawing -- it's so sweet and kind of her!!! Much love to all of your amazing family!
At 8:28 AM, Anonymous said…
Natasha, we are watching your progress waiting for an opportunity to help. If you end up needing the allogenic transplant, please let us know ASAP, as I would like to try getting as many russian-speakers tested as possible. Anthony's offer to watch Andryusha stands whenever you need a break.
P.S. You are worth more than a mil to us :-).
At 1:23 PM, Anonymous said…
Natalia, it's Melanie LeBlanc. I am saddened to read your update but I am continuously amazed at your bright spirit and wonderful attitude on life. I pray for you everyday and I hope that you all make it through this and can look back one day and smile knowing that you were all true champions and God's angels! I think both you and your husband are super heros. I would like to do whatever I can to help. I am just so worried that I'll have some bug from my kids and accidentally get you sick. I never have ill intentions but sometimes things like that happen. My kids seem to always be coming down with something. I cry everytime I read your updates. Not because of how sad I am but because of what a hero you are and your words touch the very core of my heart. I love all three of you and I'll be there for you in ANY WAY possible so please let me know. I pray for you and I hope things get better. Hange in there gal. You are so wonderful!!!! I'm glad to hear your baby boy is doing well. He is so precious. He has wonderful parents! God Bless You!!!
At 10:49 AM, Anonymous said…
Querida Natalia,
Your courage and determination puts the rest of our problems in such a distance and perspective. As you say we have to be always thankful to the Almighty for what we have, our families and togetherness.
You are in our daily prayers and thanks God for this channel of communication.
God bless you ... Mioara, Anisa & Samandar
At 9:05 AM, Anonymous said…
Hi Natalia! It's Carrie (Light) Austin from Hewitt. Cathryn forwarded me your blog address. I had no idea that you were going through so much. But I just want to tell you that I am amazed at your strength and that I admire your tenacity. I will keep you and your family in my prayers. Remember to remain faithful. Our God is an awesome God. He can work wonders!
At 11:27 PM, Anonymous said…
Natalia,
Thanks for your mailbox note. I've been thinking about you a lot and keeping up with your website. You seem to be having more than your share of challenges. I am praying for you and sending you little bits of strength from CA. You are so strong, although you may not feel like it some times....keep taking it day by day and enjoy those precious days that you feel good.
Love and strength,
Rebecca T.
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