Natalia's journey

In reality our entire family news will be shared through this blog as our baby grows and as we fight cancer.

Friday, June 20, 2008

Has it been 2 months already?

Thanks for everyones' e-mails and blog comments wondering where am I or if I am ok... I am here, life goes on and that's pretty much it. Raymond has been so busy with work that I have a bigger than ever share of responsibilities and that leaves no time for Internet and blogging. Besides, I am still having health issues some of which I choose not to share here. To sum up I went to see specialists at MD Anderson to evaluate if I have chemo brain (a side-effect of all the chemo I've had) and if I do (which is the case) what can be done about it... I received some suggestions of how to better organize my life and avoid stress but the bottom line is fatigue which causes stress and affects the brain. They referred me to the fatigue clinic and I am patiently waiting for my mid September appointment. In the meantime, I keep experimenting with different sleeping aids as I dream of quality sleep. Don't get me wrong, I am tired each and every day, and I am so wired that I can't fall asleep easily and when I do it's hard to stay asleep though the night.... my eye lids are closed but feel hollow and 'bright light' is haunting me through the night... you get the glimpse, right? And brightest thoughts/ideas come at night too but by the morning/day time I loose them all only to be left with the sagging feeling that chemo brain is in my way....

Moving back in to real world.... Next week I am going for scans and will have results by the first of July -- please join my prayers for boring results and check back in 10 days or so. In the meantime, I've added some random music I like to entertain you as you check in for updates only to find there are none :)

I feel the time in nearing for this journey to be called a 'happy end' story as September will be my 2 year transplant anniversary. 2 years is the silver lining that will reduce my relapse chances from 35% to 5% and it will bring huge mental relief. So if all stays clean and good then my September update will be most likely the closing chapter of this blog. Thank you for following this long yet very profound journey.

3 Comments:

  • At 9:40 PM, Anonymous Anonymous said…

    Natalie,

    I check your blog every few days. I'll keep you in my prayers. Your sweet family deserves a break.

    Love always,

    Nastia

     
  • At 7:22 AM, Blogger Susan said…

    Natalia,
    I didn't know they had a fatigue clinic ... what a gift that you have one in Houston. Fatigue is no small issue and quality sleep for many of us is a constant struggle. You are constantly in my prayers. It is wonderful that you are surrounded by so much love by those two sweet dear guys in your life and all your family and friends.

     
  • At 11:25 PM, Anonymous Jamie said…

    Natalia,
    My prayers continue for you and your guys! You will cross this hurdle as well, and once again be able to sleep well and feel rested. Your body just needs time to heal completely.
    Love ya,
    Jamie

     

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