Latest and GREATEST results!
Once again, I've gone for my PET/CT/bloodwork/ex-ray tests and as of now I am all CLEAN!! What more could I ask for? I am HAPPY!
There are still some residual opacities in my lungs but since they aren't growing or moving my doctors feel confident I am ok. And while my bloodwork is still below the normal levels it's made some incremental improvement and since a slow recovery is expected after the transplant I am happy with any progress. My major concerns are still the fatigue and some dizziness when I bend down (due to low blood pressure in the 80s/50s range). Thus, celebration this time is not as excubirant as before; in fact, I can no longer be childishly happy because I know that sometimes victory is just a matter of luck -- I am sad when I think of Alese and even more sad when I think of my two fellow Hodgkins board members who had their transplant at about the same time as I did but who unfortunately relapsed. Dave has 2 kids (4 and 8) and Sarah has Lorainne (her partner) and 7-8 pets. I wish they'll find some way to cure them or at least buy them another 10-15 years of life. Both Sarah and Dave have great positive spirits, love life and so deserve to be cured.
So while I proudly wear my new t-shirt :) (see below) I do acknowledge the bittersweat taste of my small victories of every 3 months....I am so glad to be reliefed for this long and hope that my fatigue will improve and that I can start the "new normal" life working and raising a family in the next 6-8 months.
Enjoy the upcoming summer! Now that I finally have the doctor's permission to travel I will be leaving for Moldova and so my posts will be not as frequent but I'll try to post once a month. Hugs to everyone!
There are still some residual opacities in my lungs but since they aren't growing or moving my doctors feel confident I am ok. And while my bloodwork is still below the normal levels it's made some incremental improvement and since a slow recovery is expected after the transplant I am happy with any progress. My major concerns are still the fatigue and some dizziness when I bend down (due to low blood pressure in the 80s/50s range). Thus, celebration this time is not as excubirant as before; in fact, I can no longer be childishly happy because I know that sometimes victory is just a matter of luck -- I am sad when I think of Alese and even more sad when I think of my two fellow Hodgkins board members who had their transplant at about the same time as I did but who unfortunately relapsed. Dave has 2 kids (4 and 8) and Sarah has Lorainne (her partner) and 7-8 pets. I wish they'll find some way to cure them or at least buy them another 10-15 years of life. Both Sarah and Dave have great positive spirits, love life and so deserve to be cured.
So while I proudly wear my new t-shirt :) (see below) I do acknowledge the bittersweat taste of my small victories of every 3 months....I am so glad to be reliefed for this long and hope that my fatigue will improve and that I can start the "new normal" life working and raising a family in the next 6-8 months.
Enjoy the upcoming summer! Now that I finally have the doctor's permission to travel I will be leaving for Moldova and so my posts will be not as frequent but I'll try to post once a month. Hugs to everyone!
posted by Natalia @ 10:33 AM
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