Natalia's journey

In reality our entire family news will be shared through this blog as our baby grows and as we fight cancer.

Wednesday, May 30, 2007

Latest and GREATEST results!

Once again, I've gone for my PET/CT/bloodwork/ex-ray tests and as of now I am all CLEAN!! What more could I ask for? I am HAPPY!

There are still some residual opacities in my lungs but since they aren't growing or moving my doctors feel confident I am ok. And while my bloodwork is still below the normal levels it's made some incremental improvement and since a slow recovery is expected after the transplant I am happy with any progress. My major concerns are still the fatigue and some dizziness when I bend down (due to low blood pressure in the 80s/50s range). Thus, celebration this time is not as excubirant as before; in fact, I can no longer be childishly happy because I know that sometimes victory is just a matter of luck -- I am sad when I think of Alese and even more sad when I think of my two fellow Hodgkins board members who had their transplant at about the same time as I did but who unfortunately relapsed. Dave has 2 kids (4 and 8) and Sarah has Lorainne (her partner) and 7-8 pets. I wish they'll find some way to cure them or at least buy them another 10-15 years of life. Both Sarah and Dave have great positive spirits, love life and so deserve to be cured.

So while I proudly wear my new t-shirt :) (see below) I do acknowledge the bittersweat taste of my small victories of every 3 months....I am so glad to be reliefed for this long and hope that my fatigue will improve and that I can start the "new normal" life working and raising a family in the next 6-8 months.

Enjoy the upcoming summer! Now that I finally have the doctor's permission to travel I will be leaving for Moldova and so my posts will be not as frequent but I'll try to post once a month. Hugs to everyone!

Monday, May 07, 2007

How I hate this disease....

I am shocked and heart-broken over Alese's passing ...
It looked like she would pull through once again but no ... I know pneumonia can be life threatening and that her body was all worn out after all the treatments (for me the pneumonia treatment was just as hard as the chemo) yet it's still too hard for me to comprehend why this happened to her. Her mom so eloquently summed it up: "...Heal our hearts and allow us to move forward with the same courage, grace and dignity that Alese lived her life." I can only hope that my remaining journey will be on the path of service to others filled with courage, grace and dignity.

The only other positive news is that our friend Aman successfully completed the marathon this weekend; Raymond and I are so amazed - he did a total of 56.5 km and together they've raised $5,256!!! Now, their goal is $10,000 and Elizabeth will be doing her marathon in June so there is still time to support them. Here is their web page where you can contribute securely online - THANK YOU!!!